JULIA FULLERTON-BATTEN

Project Description

Adam and David

Both David and I have Ocular Cutaneous Albinism. This leads us to have just below 10% vision with nystagmus (involuntary eye wobble), very pale skin and we burn very easily. We have both had the condition since birth but have both adapted to it as it is only what we know.

The background in the photograph relates to us because as a family we love to travel. Unable to sit in the sun, we have to find other things to do on holiday. A few years ago we decided to try scuba diving, and that has now become a family passion. When we are under the water (20m down) we are protected from the sun, thus can’t be burnt. Being underwater is a safe world away from the sun and somewhere where we can forget all about our eye condition. (Even though we may not see everything everybody else does underwater).

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