Project Description


“I have a degenerative disease of the retina called Lebers Congenital Amorosis. It causes the light sensitive cells in my eyes to die over time. It is caused by a gene mutation passed down from my parents. There is currently no treatment, but I am talking to the Oxford Eye Hospital about taking part in their research to identify the gene through analysing blood samples. There is research being done to grow new retinas and I am hoping that this will one day restore my sight. I have not been able to see how I look compared to other girls and women, and so have always been very unsure about my looks, particularly as my mum has never been complimentary. I fantasised about being like a beautiful princess one day. I love dancing, so I talked to Julia about shooting a backdrop that was like a beautiful ballroom with glittering chandeliers where I could dance like a beautiful princess.”

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